Shifting the Focus: Lessons Learned from the Physical ......facebook.com/nfceliacawareness...

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NATIONAL FOUNDATION FOR CELIAC AWARENESS

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with

K.C. Wilder, PhD

July 18, 2013

Shifting the Focus: Lessons Learned from the Physical & Emotional Well-Being of Gluten-Free Athletes

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Important Reminders! ① Will this information be available at a later date?

• Yes! • Webinar recording will be posted along with the webinar slides within 72 hours after the live webinar ends.

Download recorded webinars and slides at the Archived Webinars page: CeliacCentral.org/webinars/archive/

② Are continuing education credits available? • Yes! • NFCA will provide a certificate as proof of participation for each webinar. Attendees must complete the follow-up

survey in order to access this certificate. Program participants will receive a link to complete the follow-up survey on Tuesday, July 23rd through an email from NFCA.

• To ensure that you receive this email, make sure that NFCA (National_Foundation_for_Celiac_A@gmail.vresp.com) is on your allowed senders list. If you have unsubscribed from any NFCA emails, please register for the webinar with a new email address. Make sure your email address is spelled correctly when registering, as we will use this for our follow-up communications.

• Please note that RDs and DTRs are not permitted to claim credits by viewing archived webinars. Only those who

register and attend live webinars will receive the opportunity to obtain continuing education credits.

• Each participant must register for and log in to the webinar in order to receive credit. In the case of group viewing, only the registered and logged in participant will receive credit for the webinar.

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Watch & Win! • Six boxes of each of the

following:

• Erewhon Supergrains Buckwheat & Hemp Cereal

• Soon-to-be-released exclusively to Whole Foods Market Erewhon Supergrains Quinoa & Chia Cereal

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Watch & Win! • Three winners will receive a copy of The Gluten-Free Edge

by Peter Bronski and Melissa McLean Jory, MNT

• Discusses how to live a healthy, ACTIVE, gluten-free life with sound gluten-free nutrition advice

• For athletes who are gluten-free for medical reasons, as well as athletes who are interested in voluntarily going gluten-free

• Grounded in science

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Watch & Win! • One winner will receive a free 50-minute mental training session for a high school or

collegiate athlete with Dr. Wilder

• Dr. Wilder will also provide the student athlete with complimentary copies of The Mental Edge Training workbook series

• Topics to be addressed range from developing superior confidence to letting go of perfectionistic tendencies

• Interested? Email webinars@celiaccentral.org by July 26th - One winner will be selected at random

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Welcome!

• A distinguished athlete with demonstrated expertise as a certified trainer, prolific author, corporate advisor and motivational speaker • Dr. Wilder holds a doctorate in Applied Sports Psychology from the University of Virginia • Achievements as an amateur and professional athlete include All-American cycling honors, a top twenty U.S. professional cycling ranking, two national Master’s championships, and a top ten finish in the Masters World Track Championship

K.C. Wilder, PhD

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On Today’s Plate ① Appreciate the unique needs of a gluten-free athlete

② Learn how to educate a gluten-free athlete and build trust with him or her

③ Determine how to set and achieve goals as an athlete with celiac disease

④ Maintain your focus on a gluten-free diet by using the 3 R’s

⑤ Answer your questions!

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What I Do • Mental training

• Focus on youth-student athletes of all performance levels nationally

• One-on-one mental preparation (in-person, Skype, phone, and email)

• Individualized programs and tactics on and off the field

• Take academics studies and relay them to be applied

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Common Goals

• Move on the continuum toward adherence

• To move FORWARD, we need someone who believes in the athlete and believes that the athlete can follow through

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Understand that the Athlete with Celiac Disease Is Unique

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Common Mental Feelings Pre-Diagnosis

• The unknown

• Worry and self doubt

• Questionable identity

• Isolated and excluded

• 6-10 years is the average time to diagnosis1

1. Source: Daniel Leffler, MD, MS, The Celiac Center at Beth Israel Deaconness Medical Center

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Approaching the Athlete With Celiac Disease: Mutual Trust

• Step 1 as coach = Adopt gluten-free lifestyle • Step 1 as athlete = Trust

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Case Study: Athlete with Celiac Disease

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His Story • 17 years old

• Highly recruited high school football player

• Ill before practice and games

• Kept celiac disease diagnosis a secret from friends

• Lost weight after diagnosis

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How I Helped Him

• Suggested blood work with gastroenterologist

• Shared case studies of other athletes with celiac disease

• Relayed information from a nutritionist

• Initiated 3-day food journal

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How I Helped Him (cont.)

• Labeled gluten-free food at home and kept it separate from family

• Set out food alternatives for social functions • Removed gluten from my own diet

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Established Goals

• Process Goals • Performance Goals

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Process Goals

• How do I want to feel?

• This is doable

• Regain identity loss

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Performance Goals

• Weekly success of gluten-free foods

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The 3 R’s ① Recognize

② Regroup

③ Refocus

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1. Recognize

• Skip analyzing what gluten-containing food is in front of you • Don’t get overwhelmed by fear

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2. Regroup

• Breathe in (not the gluten)

• Let go

• Think about the outcome if you ate or came in contact with unsafe foods

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3. Refocus

• Search for better choices

• Get back on track

• Look for the “CAN” eat and safe foods

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What can you do?

• Find the right support people • Remember the 3 R’s • Contact credible patient advocacy organizations like NFCA

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Questions & Answers!

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http://bit.ly/15uPpQI http://pinterest.com/attunefoods https://www.facebook.com/attunefoods?ref=hl http://www.twitter.com/attunefoods

Visit us at: www.attunefoods.com

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Celiac Awareness Night With The Phillies • When: Friday, August 16, 2013 • Time: 7:05 PM • Where: Citizens Bank Park in

Philadelphia, PA • Purchase tickets:

www.phillies.com/celiac (Use code CELIAC when ordering tickets)

• New this year: Aramark, the foodservice provider at Citizens Bank Park, will now host a dedicated gluten-free concession stand, permanently located in section 136

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Save the Dates! • Topic: "GREAT U Special: Navigating the Gluten-Free Social Scene at College” • Date: Wednesday, August 7, 2013 • Time: 8:30 p.m. Eastern/5:30 p.m. Pacific • Speakers: Rebecca Panzer, MA, RD, LDN and Sam Master, a third-year medical

student living with celiac disease

• Topic: “Kids Central Special: Packing the Gluten-Free School Lunchbox” • Date: Thursday, October 3, 2013 • Time: 8:30 p.m. Eastern/5:30 p.m. Pacific • Speaker: Garrett Berdan, RD, Chef

• More to come!

• Check out the NFCA webinar page: www.CeliacCentral.org/Webinars

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• New web section: Drug Development and Clinical Trials www.CeliacCentral.org/drugdevelopment

• NFCA blog: Celiac Disease Athletes for Awareness www.CeliacCentral.org/athletes-for-awareness

• NFCA interview: Q&A With Dr. K.C. Wilder http://www.celiaccentral.org/athletes-for-awareness/q-a-with-sports-

performance-coach-for-gluten-free-athletes/

NFCA Resources

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Thank You! • NFCA Webinar Questions: webinars@celiaccentral.org

• Dr. K.C. Wilder: www.drkcwilder.com @kcwilder facebook.com/kathryn.c.wilder